Mother and daughter warn of rare anaemia disease that make even ‘simple tasks a struggle’

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The condition is complex, and is commonly passed down through families, with 50 percent of children with the disorder having a gene defect.

Similar to other common anaemia conditions, such as sickle cell anaemia, vitamin deficiency anaemia and iron deficiency anaemia, symptoms of DBA can include fatigue, pale skin and a rapid heartbeat.

On the other hand however, DBA can cause more severe symptoms such as physical defects. These symptoms can affect the hands, head, neck, arms, kidneys, heart and genitals.

The young daughter explained her personal journey with DBA and some of the side effects she has to deal with in her daily life.

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